https://www.bbc.co.uk/iplayer/episode/m000pz1w/storyville-locked-in-breaking-the-silence I once told the doctor there was nothing much wrong with me, apart from bits falling off. I’m hitting sixty and that’s the kind of thing you expect. My biggest fear is dementia. When you talk to others, often you hear, ‘My mum, or my da… had it’. Director and cameraman Xavier Alford, aged 42, is a father of two and he suffers from a rare neurological disease...