Posted by The royster on Sun, 25 Oct 2020
Never thought of doing this before but as I have been once again ordered by the lovely Linda Wigzell Cress to get writing again, here goes.
Having been active for the most part throughout my life, it came as a shock when I was told that I had Muscular Dystrophy. A muscle wasting condition which meant I was going to get weaker and weaker as my later years have proved.
I knew something was wrong in my late 30's but my GP just dismissed this saying "Well, at your age it's all a downward spiral".' What, you must be joking' say's I. At which point I got up and left.
I changed my GP a few months later, still knowing something wasn't right. I was struggling to climb stairs, carry anything of weight and basically feeling weaker than one should at this age.
My new GP showed concern and made appointment for me to see a neurological physio at our local hospital. After trying without success to do certain movements she stopped and said that she would have to speak with GP. This lead to a visit to a Neurological Consultant who decided that a muscle biopsy would be the next move. Biopsy date set, tissue taken from leg and sent away for analysis.
1 week later a call from Consultant for an appointment confirming a diagnosis of Limb Girdle MD.
Going back over the years we can find no other family member having suffered with this condition. But the most likely reason for me being the fall guy was that it had been carried in the family for many years and both my parents were carriers, both passing a faulty gene. Oh lucky me! .
So, that's what it's all about really. Diagnosed at age 49 carried on working until 56. Couldn't take the 12 hour shifts so called it day with the blessing of the missus, my GP, Consultant and Physio.
Still managed to take our little dog for short walks, being careful not to trip and fall but still managed quite a few drops to the ground. The other walkers were brilliant in helping and the Rangers at the park would come and get me if I was on my own. Even little Suzi ran after a guy who was walking nearby but couldn't see me. She barked and barked at him until he realised something was up. Bless her.
OK, so falling is now big issue for me as I am unable to break a fall and normally land on my head these days. Help is sometimes available with mates or family, but otherwise, especially if I have hurt myself, it's a call to the guys and gals in Green. They are absolutely brilliant. They get me up, check me over and stay with me until I am stable stats wise. They always suggest taking me into hospital but that creates other problems (bit too personal to add here). But if it was really necessary I would have to go.
Up to date now. I had a fall 2 weeks ago, have no idea how i managed it but fell backwards and gave the head a real bang on the floor. Maybe I should have gone for a check up, but I went for the bag of frozen peas and a sweet cuppa. I've also been chained to the walking frame. Something I've put off for as long as possible, but as they say, "needs must". Head still feels a little light, which I may well get to see GP next week. Well isn't this fun. But I often say,' I've reached this age and can still have a laugh and thoroughly enjoy my family. Especially our 2 Granddaughters.
Right then. Grand Prix on soon, so I'll leave you for now and gt back again asap.