Parkinson's Awareness Week 2015 547 words
Parkinson's Awareness Week 2015
It's that time of the year again. Yes, the good old Shakers and Shufflers of which I am one, refuse to be ignored. We will raise awareness one way or another. Why do we need to do that? Because there are still people out there who tut-tut when there's a bit of a queue in the supermarket, and someone is slow getting their money out at the till. For example, my friend and I were in Lidls and just before reaching the till there was an announcement. 'If you require assistance any one of our staff will be happy to help you.' When my friend reached the till, she struggled to get her shopping out of the trolley. The stony-faced assistant tossed my friend's shopping through the checkout while she fumbled to get her card out to pay. So now it was
my turn, and I started to load my shopping but I am not as quick as my friend so you can imagine stony face now looked like she was sucking a lemon. I ignored her and went at the only pace I could which I readily admit is dead slow but as far as I am aware that is not a capital offense. It just requires patience, something that the shop assistant was lacking. So, remembering the tannoy announcement I called to my friend 'I think to be deaf must be worse than being a bit slow because of Parkinson's. Look how miserable it makes some people.' The cashier's facial expression never changed; it just went a little pinker, so I was relieved to see the poor woman wasn't deaf after all!
Often when I'm in a queue at the checkout, someone starts tut-tutting because I am slow.
I usually turn around and say 'Yes Parkinson's is a nuisance but it only irritates you whereas I have to live with it twenty-four seven.' You would be surprised at how many people stop tut-tutting after that. They have no idea how I envy them their quickness of movement that once I had. If they get irritated for a short while because someone is a bit slow, how would they manage if it took them twenty minutes to get out of bed. Or half an hour to get dressed because buttons and jewelry can be a nightmare. But that is only half the story because beside the slowness comes the pain and the falls and the fatigue and then to top it off many suffer from dyskinesia a side
effect of the drugs. There is a lady in our group who comes to my house for rehearsals whose dyskinesia is so bad she shakes herself out of one of my large deep leather chairs despite being surrounded by cushions. That is no joke! She cannot have a speaking part
because her speech has almost gone, and only her husband can make sense of what she is saying. How frustrating must that be? But she tries to do everything we do, bowling, drama, meetings, lunches, in fact, any social occasion, and she's right there. Now that takes
I've had my say now, and if what I have written raises awareness in some small way then
my work is done...for this year!