Diagnosis Of My Appointment
By skinner_jennifer
- 455 reads
Dear diary...Thursday June 18th will be a date I won't forget in a long time, it's written down on about four calendars in our house and in two diaries and now here on abc tales.
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Comments
I'm so sorry about the bad
I'm so sorry about the bad news Jenny - I can totally understand how it's all very overwhelming at the moment. I think trying to stay strong is the perfect thing to aim for right now and perhaps you can break things down into steps so they don't all seem to fall on your head at once.
Maybe if you feel up to it later on, you can think about contacting the Macmillan nurse - I've heard such good things about how kind and helpful they can be - as well as reassuring, which you sound in need of
We are all here for you whenever you want to pop in. Sending you a big hug xx
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Hi Jenny
Hi Jenny
Thanks for letting us know about the diagnosis and future treatment. At least you have been given chemo for two years which seems to give some hope. Cancer treatment in my lifetime (70 + years) seems to have progressed fantastically with many cures and delays to its progress. New treatments coming along all the time.
Lets hope the new drugs prescribed will help with breathing and sleep problems.
Thoughts and hopes with you.
Take care
Lindy
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Sory, Jenny. At least they
Sory, Jenny. At least they are suggesting treatment at present not just palliative care, but I hope the treatment and all the appointments aren't too difficult in themselves. As Insert says a Macmillan nurse could be a real friend, and one who understands the system and can see how you are coping and make suggestions. much love, Rhiannon
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I am so sorry
No words can really help, I don't really know you, but my heart goes out to you, if that helps. Your pain, fear, and your struggle will be yours to go through, experience and endure. My prayers are with you and all my care. Just know you are cared for by people like me you have never actually met.
All my concern, Ray
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Hi Jenny, I'm getting
Hi Jenny, I'm getting immunotherapy. My dad died in six weeks. But that was thirty years ago. It was pretty much palliative care then. New treatments offer much better odds. The NHS and Macmillan nurses are great and the nurse to staff ratio is unnbeliveable. But then again the two busiest places I know are the crematorium and the Beatson. In terms of why me? My understanding was why not me? No drama. The hardest part was telling my loved ones. Some cried. I didn't. I waited until I knew I had a chance of life before I told anyone. First cycle of immunotherapy was painless and my tumour has shrunk. No side effects to talk about. Although on the first day, I did lose the use of my left arm, or thought I did. But I'd just been lying on it overnight. I said no drama. But I just can't help myself wiht the dead-arm trick. If I lived in America I'd be already dead. The cost of treatment really is astronomical. We're lucky. We really are. Everybody dies of something.
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Great attitude Jack, wishing
Great attitude Jack, wishing you well. Kat x
PS As well as being glad you don't live in America, I think you should be glad you don't live in England. The NHS sounds so much better up there in Scotland, no NHS prescription charges for a start.
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cheers Jenny, I have read
cheers Jenny, I have read your memoir on here. And I know how difficult you had it. This is just another bump on a long road. We've had a life. Anything more is a bonus. There are far worse things than cancer. Or dying.
You're right Kat, zero charge for prescriptions. As it should be. The donought in the American model is those that pay for treatment can't afford to pay for the cure (prescriptions). Medical engineering. They've built the bridge but there's a hole in the middle. We get all that shit with our dentists. Or if you're an animal person, your pet. The first questiion isn't what's wrong, but how are you going to pay. As you know, I tend to start ranting here.
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Absolutely. When I used to
Absolutely. When I used to go to one of those vets who are run by big companies (60% of them) , the first thing the vet would say was 'is he insured ?'. If I said yes they would suggest all sorts of expensive treatments which wouldn't necessarily be in the cat's best interest or quality of life.
Now I take my animals to a lovely independent vets in Cirencester, started by two vets and a nurse, who got out of the corporate vet model. One of them used to have my old cat at her house if he had to be in over the weekend (no charge) and when I was too ill to drive she would come out of her way to pick him up from my house (no charge either).
It's the same with most care homes which are not run by people who care about little old ladies and paying their staff a decent wage, but are run by big holding companies who only care about the shareholders.
That's my rant !
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no rant, Kat. common sense.
no rant, Kat. common sense.
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Hi Jenny,
Hi Jenny,
Glad to hear like Arnie you will be back, that's the important thing, plenty of defiance. it sounds as if it will be a trial with all the appointments and treatments but I am sure your stoicism will see you through.
Best Wishes,
hilary ![]()
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Ah, so sorry, Jenny. The
Ah, so sorry, Jenny. The upside is you are staying strong. Two years of chemo is a long haul but it's a clear plan which is a good thing in these circumstances. You have many friends at ABCTales. Treatments for cancer have advanced rapidly over the years and I think things are significantly better than they were in the past. Keep smiling and take care x
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You're a plucky lass, our
You're a plucky lass, our Jenny, and I have so much admiration for how you're coping, and for your honesty when it all feels so difficult. Please do keep putting updates on here, when you feel able. We're all rooting for you x
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Hoping
Hello Jenny.
I’m sorry I drifted away for a while so I’ve only just read this, and your two previous posts On This Peaceful Day and Torment. Two poems, one of beauty and one of great courage, just as your writing has always been in the time I’ve known you.
I can see that you’re going through a harrowing ordeal and I can only admire how you’re facing up to it with such strength and being brave enough to write about it. I’m really grateful that you can share your thoughts as I have no idea what would be going through my head if I were to find myself in a similar situation.
I hope your medication brings you some relief and that the chemotherapy, when it starts, causes only the minimum of discomfort. I hope also that you’ll have some help from a Macmillan nurse. Through my work in the past I’ve known a fair few of them, together with the people they have cared for, and they have always been absolute angels. Stay strong, and write when you’re feeling up to it. I’m very concerned for you and interested to hear about your progress, as I’m sure I’m sure everyone within ABCtales is.
My fingers are well and truly crossed for 1 July but in the meantime I hope you and your partner can enjoy some peaceful and happy time together.
Good on you dear Jenny.
Turlough
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Dear Jenny- you are a strong
Dear Jenny- you are a strong and beautiful soul and I wish you to feel the sunshine, breathe the fragrance of flowers, enjoy each sunrise and sunset and not let the list of treatments or side-effects diminish one second of a day for you. I know there will be difficult days ahead and my heart wishes it wasn't so and I pray the treatments will be beneficial and have none of those ill effects. ![]()
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Thank You so much for writing
Thank You so much for writing again Jenny. If a person isn't scared they're not brave - they're unsensitive. Through your being such a gifted author, we know you are strong like reeds, which seem fragile but do not break even in tempests. I wish all our hopes and thinking of about you can be around you always, like armour in this Battle. Really wishing with all my heart that you have a good sleep tonight, and the weather is cooler
Lots and Lots of Love XXX
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